You're Not Gonna Believe This!!

We walked in the PCICU this morning to this...

and couldn't have been happier!  We were expecting Derrick to be more swollen than yesterday so we had tried to prepare ourselves, but he looked SO much better!  He had a good night and was sleeping comfortably...obviously!  Ha!

D woke up shortly after we got there because he heard our voices and he immediately tried to sit up.  After "convincing" him to lie back down, he went back to sleep and rested peacefully for much of the morning.  Imagine our surprise when as his nurse was updating us on his night she told us that he could possibly move to the floor today or in the morning!  Wow!

As the day progressed Derrick started eating,

and even held his own bottle!  (I hope you're proud Heidi! :)

I think he was trying to show off and prove that he was ready to get out of the PCICU.

He even gave in and took a binky, which he hasn't taken in months.

I guess old habits die hard, huh?

So, the day went on and we were on again, off again with the whole moving to the floor possibility.  There were three kids on the list to move up and Derrick was number two.  The first one went, then someone got discharged, and now we're on 7C!  Woo Hoo!! 

Today's list of accomplishments:
  • cerebral oximeter removed
  • oxygen removed
  • RA line removed
  • arterial line removed
What's left?
  • two chest tubes
  • peripheral line
  • pacer wires
There's rumor that the chest tubes will go tomorrow.  Dr. Hsia thought about removing them today, but decided to leave them in one more day.  After all, he just had open-heart surgery yesterday.

Today while they were preparing to remove D's lines they gave him a dose of Morphine.  We had to leave because they'd rather parents not watch the procedure because it's painful and the kids usually get pretty upset.  Well, when his nurse gave him the Morphine she said he started waving and trying to dance around.  Dr. Hsia ordered another dose along with some Versed, and Derrick continued to wave and talk.  She said he was acting like he was there for a party!  Another half dose later, Derrick was holding his bottle and pointing it at the crowd that had gathered around to watch his show, then he would take a sip and continue his madness.  They gave up and just pulled the lines, and they said he didn't mind at all.  Obviously he enjoys morphine?  That can't be good! Lol!  Later we had people stopping by his bed telling us about his show saying, "You've got a partier!"  Why doesn't this surprise me? :)

All of the doctors and nurses have been amazed at how well Derrick has done with his recovery.  Dr. Hsia has been all smiles and couldn't be happier.  They told us that he couldn't move through the process any faster, and that he's one tough little guy...but we already knew that! :)

Once again, thank you so much for your messages and emails; we treasure reading each one of them.   Someday Derrick will enjoy reading them too.  Maybe before his next surgery we'll go through and read them all to him so he can see how many people love him and pray for him.  If it makes him one-tenth as happy as it makes us, he'll be over the moon!  Most of all, thank you for your continued prayers.  We know they have carried all of us through this journey, and we hope you will continue to pray for all of our family, but especially for Derrick.  He's one tough little guy, but only by God's Grace.  We pray that He continues to bless Derrick with the strength that he has thus far.  Sometimes it makes me feel guilty that he has done so well with this whole heart thing while other kids fight just as hard and have a more difficult time.  I know that God has a plan for all of them, and I know that Derrick's journey can take an unexpected turn at anytime.  I ask that you please remember all of the kids (and their families) who have to fight so much harder than a child should ever have to fight.  Please especially remember our friends Logan and Jordan, who are recovering from surgery, and Ruthie, who will be undergoing surgery really soon.  Thank you, from the bottom of our hearts!

And without further ado...

a sweet cheeky smile for you!


  1. Wow! That is simply amazing! You are right, D IS a fighter, and only by the grace of God could he come out on top so fast like this! He looks almost like his normal, adorable little self...like he hasn't even had surgery (except for a couple extra "owies!" What a trooper! I'm sure you are thrilled with how well he's doing, and we'll continue to keep him in our prayers.

    Jen, Craig & Andrew

  2. Hey guys- i had so much fun partying in the pcicu with derrick today! he was an absolute champ and so much fun to take care of. i can't believe how much he's grown. hope your comfy on 7c!
    :>ann tompkins, pcicu rn

  3. I'm soooo glad to hear Derrick is doing so well and has gotten to move to the floor already. It sounds like you better watch out with that morphine and the partying, haha. I hope he continues on this track and can get home quickly. Godspeed to his recovery. My thoughts and prayers are with you all continuously. Take care of yourselves and keep smiling.


  4. We are so thrilled that Derrick is doing so well! As you said...He IS one tough little guy! It sounds like he's going to be like his second cousin (Is that right?) Collin--A dancin' party animal. ;) They'll get along great! :) We can't wait to see him! You do such a great job keeping us all updated on this blog. It is such a blessing to get online and read about how God is working in and through your little family! Thank you! We LOVE all the pictures! Derrick looks SO good! I can't believe he just had open heart surgery yesterday! You guys try to get some rest tonight and we will continue praying for all of you and THANKING God for all of His goodness thus far! Love you!
    Greg, Becky, Collin & Caleb
    Isaiah 58:9

  5. WOW!!!
    What a trooper! Keep up the good work!

    Heart Hugs!
    Gale Bagwell aka Grandma Gale (Ivan Taylor's grandma, HLHS)

  6. Fabulous!!! Way to go D!!! I'm so happy he's doing so well and about the big move! Woo Hoo! The party is on!!! Keep up the great work tough guy! Our prayers continue!

  7. He looks wonderful and cute as ever! So happy for you that he is recovering so well! Continued prayers fo you that it continues and he moves to the next floor and home soon!


  8. OMG, Is he trying to beat Lo out of there???? :O) GO D! I am at work until 7 tonight, but I will try to call you. SOOOO glad he is doing well! I was getting worried there for a while since we hadn't heard an update. Praying and sending hugs!
    Love, Jess, John and Lo

  9. We are doing the happy dance here in Tennessee at all this good news!! We're so excited that you're already on the floor!!! What an amazing little guy you have there! He looks wonderful and I know you're so relieved. You guys are always in our prayers and we are especially praying that Derrick continues to progress as well as he has thus far. We will look forward to the next good update!

    Kati, Rocky, Evan & Brycen Dunn

  10. How great! I am so impressed with his progress. He looks like himself. I love the hands behind his head while he sleeps. Still praying for you!


  11. Shannon, now that you are on the floor, please look up the Bentley's --- little Anna Grace is recovering from her first surgery. Her mom is Tina. Her dad is home right now but I'm sure will be back this weekend.
    Praising God for D's wonderful progress! Praying for the blessings to continue!
    Love and hugs,
    Pam Owens

  12. OH my Praise be to God.....wonderful news and prayers still lifted up for Derrick and you. Lots of hugs
    Libby and Michelle

  13. I LOVED the story of D on morphine. I laughed and laughed this morning when I read it. Sounds like Logan when he gets a little versed. He too thinks he is the life of the party.

    It is so great to hear how well D is doing. It is just amazing to hear that at his age things are moving very quickly in his recovery. I am so happy for you guys!

    Saying lots of prayers for a continued smooth recovery for D.

    Stef, Ryan, Wyatt and Logan

  14. Wow, this is wonderful. So glad he's doing well.

  15. I am so glad to hear about D doing so well. I love the pics and that is too funny how he acts on morphine. You had me cracking up. It's so nice to see his sweet smile again. We will continue praying for him!!

  16. How wonderful that he is doing so well!! Keep it up little man!!


  17. I am so happy to hear all of this wonderful news. You are all so great at keeping us updated. He is the cutest thing in the whole wide world. I think you are going to need to chaperone his prom and other parties during his teenage years :) ! I can't wait to see him. Praying for you, always.


  18. God's Grace..never ceases to amaze me!! I was so BLESSED to see that precious lil smile that melts my heart!! I am so glad you are on 7C. Tell Miss Mary I said hello..though she may not remember us we will never forget her!! I am so glad that Derrick is doing so great...I knew he would show off just like he did pulling up the first time for you there!! Praise God!!!

    Rhonda & Family

  19. It is such a blessing how well Derrick is doing! He looks great and we are all thankful for his quick recovery and will pray it continues to be speedy. He's so cute in his pics!

    Sue Shelton & family