8.29.2012

Wordless Wednesday :: "Nack Time!"














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8.21.2012

A big day and a promise!

Before the big visit to the cardiologist we had to take a little detour.  We had to fill out paperwork for PRESCHOOL!!  I can't even talk about it right now, but here he is playing with his little friend, Lawson, this morning.


Derrick did a fantastic job at the doctor's office.  He helped check his own blood pressure (which was great) and he sat on the table by himself as the resident and Dr. S checked him out.  Dr. S said he sounded and looked great and that there had been no change.  No change for D = good news! 

Well, there was one change...on the scale!  Derrick Carter now weighs 24.2 pounds!  In case you don't remember, he's up an entire pound since the last visit three months ago!  That is something to celebrate!  :)

Of course the S word came up, but this time we were given a much more definitive answer about it.  Next summer.  Next summer?!  That's really far away and really close at the same time!  It's kind of a relief to have more of a time line though.  I think.  For now, anyway.

Jenny Kate was such a good girl at the visit and read her book quietly the whole time.  Ha!  Just kidding!  This lasted about 0.6 seconds, just long enough to snap the picture.  She really was good, though.  :)

We ran lots of errands after the appointment so Derrick decided he better take advantage of being able to release a little stress from the morning.  He decided the talk of preschool + surgery was a little too much for him to handle.

Once we got home the surgery talk continued.  Only it wasn't really surgery talk, it was after surgery talk.  This boy was promised a really special treat once he's all healed from the Fontan and it's been the main topic of conversation around this house for a while.  

What's the treat he's so excited about, you ask?  He was promised a trip to Disney World!  (And for the record, I'm not sure who's more excited, him or me! :)

After dinner D and daddy started looking up pictures of Disney World.

This is his excited face! Ha!

As they were looking, talk about Cars came up, so Justin decided to look up Disney Land.  Once Cars Land popped up on the screen it was over.  Our boy doesn't want to go to Disney World, he wants to go to Disney Land!  He wants to see McQueen! 

Oh, goodness!  

We live in South Carolina.  Florida is WAY closer than California!  But he loves Cars and he's been asking about flying on an airplane, so what did we do?  We told the boy he could go to Disney Land!  

But here's the catch.  You have to be 40 inches tall to ride most of the Cars rides.  Derrick is 35 inches tall (with no shoes).  So we set a goal and did what any good, level-headed parents would do.  We whipped out a sharpie and set a goal.

He has a long way to go!  We've told him how it's more important now than ever for him to eat, eat, EAT if he wants to go to Disney Land!  He says he can do it.  That's a lot of growing to do in the next year and a half or so, but he's a little behind so he has some room to catch up.  Let's hope he can do it! :)

And we're {secretly} on the lookout for some really tall shoes! :)

Thank you for for your prayers for Derrick.  We appreciate them way more than it is ever possible to say.  Please continue to remember him over this next year, that he stays healthy and continues to grow bigger and stronger.  It's important to him that he gets big enough to ride Cars, but it's important to the rest of us that his chest is big enough (especially because of his dextrocardia) to perform the Fontan under the most ideal circumstances.  :)

P.S.  If you missed NY Med on ABC Tuesday night, I highly recommend it.  They featured the birth and surgery of a heart baby.  If you haven't been through that experience personally, it gives you a little peek of what it's like.  We didn't watch with dry eyes! 

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8.19.2012

Goggles, Little Helpers, & and Appointment

We were walking along in Target the other day when Derrick looked up at one of the huge pictures on the end-cap and gasped.  "Wook, mommy! He has jet skis.  And goggles!"

My boy has been wanting a pair of goggles for a while now, and seeing his excitement, he not only got the goggles, but his "jet skis" too.  I didn't have the heart to tell him that they're not jet skis, they're torpedoes.  Anyway, he was so excited that he insisted on carrying them around the store himself.  Along with Lightening.  Saying his hands were full is an understatement, but it was so cute watching him walk around the store with all of his goodies.  :)

When we got home the boys snuck out to the pool to try out the new toys while the girls prepared dinner.


Somebody was NOT happy that she had to stay inside with me and in an attempt to make her happy enough to let me fix dinner, I pulled out the kitchen helper.  She LOVED it!

I was kind of nervous that she was too small but it was perfect for her.  She didn't try to escape (which is a REAL shocker!).  She was my little helper.  How did she get big enough for this?!

Derrick's quarterly cardiologist visit is Tuesday.  Of course that leaves me with a lump in my throat and flutters in my stomach, even though I have no reason to be concerned.  I'm guessing that at either this visit or the next that we'll be talking about an anticipated Pre-Fontan heart cath timeline so that gets me a little extra nervous.  I'm also holding my breath that Derrick has broken the 23 pound mark.  I've been trying to pack in some extra calories everywhere possible, so we'll see if we've had success there.  I'll keep you posted.

I want to leave you with a poem that a fellow heart mom, Stephanie Husted, wrote.  If you've been involved in the "heart world" for any length of time you've probably read some of her work.  She's the voice for so many of us who just can't get it out, and she does it beautifully.  This is exactly how I've been feeling lately:

I had a dream the other night,
Oh what a conversation!
God had come to talk to me,
About our situation.
I've heard your prayers,
He whispered,
You ask for clarity,
So I am here to answer you,
Ask what you'd like of me.

I said, "Oh Lord, thank God your here",
And then I had to smile,
I'm thanking you, but here you are,
You have been all the while.
Sometimes I get discouraged,
Of what might lie ahead,
I know I should not worry,
I know that's what you said,
But what if things get difficult,
Lord, how can I prepare?,
I fear that I may face a trial,
Too difficult to bear.
So tell me Lord, I need to know,
How can I live in today?

He looked at me with eyes sincere,
And then he murmured..."Pray".

But what lies in our future?
Can we somehow endure?
Give me something solid please,
I just want to be sure.
I'd like one dose of certainty,
To see me through each trial,
Can't you make life "perfect",
Just for a little while?
I'm doing everything I can,
Please help me learn to cope,

God took my hand with-with just a sigh,
And then he whispered, "Hope".

"Oh Lord, you know I always do,
I won't give up this fight!
I lean on faith to see us through,
Somehow, we'll be alright.
And life may not be easy,
(That's why I often whine)
But still, there are those moments,
When I see your grand design.
A life you've filled with purpose.
A plan I can't yet see,
Each footstep marked before us,
You've walked them, so shall we."

Will our lives be perfect?
Will we never grieve?

God wrapped his arms around me,
And then he said..."Believe".

Life's storms don't come silently,
They come with thunderous rain,
I know I must remember,
To seek you through my pain.
Laughter helps the heart to hope,
Hope silences my fears,
Storms may come, but I believe,
I will stand in the midst of my tears.
I'll pray, I'll hope and I'll believe,
But Lord, what if I fall?
What advice will save me?
What matters most of all?

And in my dreamy, sleepy state,
He said, "Don't let troubles upset you",
But if you fall, beloved child,
Know, who is here to catch you.

~Stephanie Husted



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8.13.2012

Hair

Derrick desperately needed a haircut.  My friend who had been cutting his hair moved (almost ALL of my friends moved this summer!!), so I wasn't really sure where I was going to take him.  He solved that problem quickly by telling me that he wanted daddy to cut his hair. 

Great!  That's easy and cheap.  The only drawback to that is daddy knows one cut.  Short!  He wanted it short, so short he got.  

He went from this:

to this (poor photo quality but HUGE difference in hair!):

to this:

A little side-by-side

I think it's adorable, even if all he can give me is a serious face.  I can't decide if he looks older or younger, but he definitely looks different.  Such a cute little different! :)

Not to be outdone with hair differences, girlfriend was up for a change too.


Not that they lasted long or were even remotely easy to get in, but I love them nonetheless.  

Now it's my turn.  I'm in DESPERATE need of a hair cut!
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