A Call....Not THE Call

We finally got a call back from MUSC Monday.  It was just A call though....still not THE call.

The lady said we may not get a surgery date until next week.  Bummer.  I told her we had lots of birthday parties and fun things we could be doing this weekend and that I hated to keep my kids stuck on house arrest for no reason.  "Oh, honey.  He won't be having surgery in the next two weeks!  Go on with your normal lives.  It will probably be two to three months before he has surgery."

Two to three MONTHS?!

I'm pretty sure my heart stopped for a second. 

I wanted to sob and squeal at the same time.  Strangest. Feeling. Ever.  Disappointment and excitement.  How do those emotions come at once?

I hung up annoyed.  They just don't understand how much of an emotional roller coaster this whole process is, and that's probably so selfish for me to even think that.  I am just selfishly so ready to get past this. 

At the same time, I'm grateful to have a couple more months of him just like he is.  No fear of what surgery will do to him.  

So for now, he won't be able to start preschool.  We'll do some preschool at home and enjoy soaking up the rest of summer.  We'll figure out all that hard stuff later...there's plenty of time for that.  

The rash is getting much better!  It actually looks worse in this pic than it does at this very moment.  We're pretty sure it was the cleaner (Chloroprep) they used on him and are working on getting some to test him again.  His skin was aggravated more by the adhesive.  They can use Betadine on him for surgery if this is what he's allergic to.  Thank you so much to those of you who shared your experiences and insight on the rash.  It stinks that so many kids have this reaction!!

"There is a time for everything, and a season for every activity under the heavens..." Ecclesiastes 3:1

Only His timing is perfect; that we do know.


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